When you have a degenerative disease, one of the most challenging things to deal with is the uncertainty. The uncertainty of tomorrow, next month, and next year. At the same time you’re feeling uncertain about the future, you’re also mourning you’re previous normal. You may have just gotten used to the latest symptoms and medication balance, and then they change.
That’s why I think PWP have become so good at living in the moment. Now while it’s true for everyone that we don’t know the future, I think those with a degenerative disease, along with their caregivers and loved ones, feel it in the forefront of their daily thoughts.
Before I had PD, I took for granted that if I couldn’t do something today, I would able to do it in the future. Now I am much more present, aware, appreciative of things in the moment because I understand all too well that it may change in the near future. Having PD is certainly no gift, but living and appreciating little things in the moment has been an unexpected gift. A gift we can practice giving ourselves each day.