the joy of walking

One of my favorite things to do is drive to a street in my city that I have never walked before, park and just take a walk. Lauren Elkin can describe why I love it better than I ever could. Have a cozy weekend!

"Walking is mapping with your feet. It helps you piece a city together, connecting up neighborhoods that might otherwise have remained discrete entities, different planets bound to each other, sustained yet remote. I like seeing how in fact they blend into one another, I like noticing the boundaries between them. Walking helps me feel at home. There's a small pleasure in seeing how well I’ve come to know the city through my wanderings on foot, crossing through different neighborhoods of the city, some I used to know quite well, others I may not have seen in a while, like getting reacquainted with someone I once met at a party." ~Lauren Elkin

is it hot in here or is it just me

unsplash-image-l-rtCtc_4c0.jpg

⭐ The summer heat is in full bloom in many areas, including mine. Although I don’t like temperature, I love the long days and try to garden early in the morning or late afternoon when it’s a little cooler. In the morning I do a garden walk around and see the little changes. Yesterday there were little strawberry guavas. I leave a bowl on my counter and nibble on them throughout the day. Green onions, basil and the last of the little spicy radishes, they’re delicious pickled. The gardenia flower is a favorite. Even though my sense has diminished, I can still smell these beautiful flowers.

⭐ Have you been keeping up on the controversy about the FDA granting authorization to Biogen for their Alzheimer’s drug Aducamunab? Here are two very interesting reads from Science of Parkinson’s and Tomorrow Edition.

⭐ Easy meals are perfect during the summer and this Salmon Salad from Dinner-A Love Story has been a favorite this year.

⭐ During the pandemic, like everyone else, I exercised mostly at home. I tried different online classes including kickboxing, Zumba, HIIT, and yoga. My usual schedule was pretty typical working out pretty hard several days a week and have days off in between so that your body has time to recover. That was fine during my life pre-PD, but in the last few years that wasn’t working so well for me. I noticed that I’d work out hard and for the next couple of days I was overly tired and it just didn’t feel good. Which lead me to start re thinking why and how I should exercise, and to find a way that it would be enjoyable and rejuvenating, not energy zapping. My goal for exercising is to keep my body healthy, keep up my strength, endurance, and flexibility, to help me live a long and high quality life with PD. It’s also to help reduce stress and improve sleep and something I want to do with consistency and look forward to.

So I started changing my routine to a more moderate pace and time frame and increased the number of days to six days a week. Monday through Friday I do about 30 minutes of moderate exercise, on Saturday I may do the same or something that’s longer or more intense, and then rest on Sunday. After doing this now for about six months, I am so happy with this regime. I look forward to exercising every day because I know it’s not going to overtax me and instead it actually makes me feel good afterwards instead of tired. I also don’t have to think is it an exercise day or not, so the consistency keeps building on itself. We are all PD snowflakes so this is just what works for me. But if you are struggling with your exercise schedule or having a difficult time starting, I encourage you to try different things until you find the right one for you.

⭐ PD Symptom of the Week - This month’s favorite (not) symptom is I have weakness in my right arm and leg. My symptoms like many people are more pronounced on one side of my body, and it’s a chicken and egg scenario that I don’t which is causing which. I have problems with my right knee, shoulder, and gait. So of course I favor my left arm since it’s stronger, which makes my right arm weaker and round and round we go. I’ve been consciously trying to force myself to use my right arm more on everyday tasks like yesterday when I was vacuuming. The fun never stops.

⭐ Lastly, my sister gave me some nail polish strips. If you have a hard time painting your nails because of your tremor, these might help. Their pretty simple to put on, there is no drying time, and they last a long time. I find that the light colors are more forgiving and don’t have to cut perfectly.

If you’re in the US, Happy 4th of July weekend! ❤️

Yes I want to exercise today!

unsplash-image-KhteBnk_kX0.jpg

April is Parkinson’s awareness month and with it comes much new connection and shared information. Last week was Hawaii Parkinson Associations annual symposium which was held virtually this year. The keynote speaker was Jimmy Choi. As you may already know, Jimmy is a world class athlete and has participated on American Ninja Warriors for several years and is also a person with Parkinson’s. He is a passionate advocate for PD and the power of exercise in the role of helping manage our illness and increase the quality of our overall health.

I’ve seen Jimmy on social media and American Ninja Warriors and I’ve also seen clips of him talking here or there, but this was the first time I’ve heard an entire speech of his and it was fantastic. There was one part where he used a backpack and it’s contents as an analogy to symptoms of PD, which was brilliant.

If you’d to watch, click here. I promise you, you’ll be motivated to get up and exercise whether you have PD or not.

shall we get some exercise

hanauma bay, oahu

hanauma bay, oahu

I am always on the search for ways to motivate myself to exercise and ways to keep it interesting. Practice makes progress.

The benefits of exercise are incredible. It strengthens our muscles and bones, keeps us flexible, improves our endurance & energy, improves balance and gait, helps mood, anxiety & depression, helps control weight, reduces your risk for heart disease and certain cancers, improves sleep, digestion, constipation, incontinence, may help slow the progression of PD, and increases our chances of living longer.

With all these benefits you’d think everyone would be exercising, but much of whether we exercise regularly or not, is not based on will power as many of us think. Much of it is based on habits and friction. We don’t decide whether we want to brush our teeth or not each day, we just do it because it’s a habit. The friction is whether we set it up to make it easier or harder. Brushing your teeth is made easier because we keep the toothbrush and toothpaste conveniently in the bathroom near the sink with water. But if we kept them in the trunk of our car and we had to go out and get them, use them, and then return them to the car, we would likely brush less.

So lets start with reducing the friction or obstacles that make it more difficult. Make it easily accessible. If you have to set up a bunch of equipment or drive far, you’ll likely do it much less. The simplest is exercising at home. Whether it’s online classes, walking in your neighborhood, or having equipment at home. Next would be things available near you. Going to classes or a gym near you, a park, or pool.

Next is to figure out what will motivate you. If you’re with people a lot of time, you may look forward to some time alone. If you need extra motivation, you may want a workout buddy or have a set class, so you are accountable to someone else to show up. If you like social media, post your exercise goals and journey there. Your social media friends will be happy to cheer you on. Make less friction by making it easier, and add friction by making it harder to say no.

Then start creating the habit. The biggest reason I see people quit exercising is because they try to do too much, too quickly. When I first started meditating, I started with three minutes a day. That may sound too easy but I knew creating the habit was going to be the hardest part. I did that daily for several weeks before I added on time. Do the same with exercise. Plan your week ahead of time and start slow and don’t increase the time, until you show up without hesitation. Then make adjustments. Remember, you’re creating a lifelong habit.

Pair it with something else. Do you enjoy listening to audio books or have a favorite podcast? Tell yourself you can only listen to it while you’re walking. Same for your favorite TV show and your treadmill. Another great pairing is a walk and talk. Set up a phone call to friend or family member while you walk.

Write it down. Tracking your progress can help keep you motivated. I love to track my progress on everything. It’s a great reminder to see little increments of improvement that sometimes you easily forget or don’t see because they are small.

You can also include more movement throughout your day. Dan Buettner is the author of the book The Blue Zones. In it he discovered seven communities around the world that had the largest amount of centenarians and observed their lifestyle and habits to see what similarities they might have. One of things were daily exercise. Not formal exercise, but movement throughout their day. Once you start taking the stairs instead of the escalator, park in farthest away section of the grocery store, you start seeing all the little possibilities that can add movement into your day. I started cutting my own grass and pruning the trees in my garden and I love all the exercise I get from it.

Have alternatives. My energy level is very different not only day to day but hour to hour. I have a list of things that I can do to exercise, so regardless of my energy, I can do something. Some days I can only manage light stretches and that’s fine. I always feel better doing something.

Lastly, don’t compare yourself to others. Everyone with PD is a snowflake. We are all at different stages in our lives and the goal is to find what works for us, what we enjoy, what we can do today, and not what anyone else is doing. Push yourself to do something small every day, but cut yourself some slack on trying to keep up with others. Do what you enjoy, and that may mean trying several different things before you find what that is. As the saying goes, “how do you eat an elephant, one bite at a time”.

dear kai

I got this email from one of our readers and thought it would be a good post. If you have any suggestions for a topic or a question, please email me at asimpleislandlife@gmail.com and I’ll be happy to try and answer on the blog or in private.

 “Dear Kai, I’ve had PD for about six years and I’m finding it difficult to motivate myself to exercise. I’ve been a moderate on and off exerciser most of my life. I’m tired a lot and it’s easier to put it off for another day. Any suggestions?”

Motivating yourself to exercise can be extra challenging with a chronic illness. Fatigue, tremors, dystonia, balance issues, and physical weakness can add up to saying “maybe tomorrow”. And if you’re a person who didn’t exercise much before you’re diagnosis, it can be a tall order to start exercising after.  But we all know the mantra that beyond for normal wellness, we with PD must exercise as much as we can. Here are a few ways to help.

Make it fun – There is much ongoing research on which exercises are best for PWP but I say the ones that you enjoy will be the ones you do the most. There are so things to choose from and you may need to try a few before you find something you like. Is there something you did when you were younger that you enjoyed and could start up again?

Make it convenient – Do things that are close in proximity to where you live or work. Research shows that the farther away your exercise place is, the less frequently you will go.

Figure out your personality – Are you the type of person who will show up more often when you are accountable to someone? Then find an exercise buddy. Aside from the workout, you could get a cup of coffee afterwards and get a twofer of exercise and a nice chat with a friend. Do you prefer having a set day and time each week or would rather have flexibility if your schedule differs a lot?

Make it a family activity – If you have kids or grand kids, doing exercise together is a great way to bond. How about an easy hike, or hit some balls at a golf range. Or while you’re waiting for your kids at their sports practice, instead of waiting on the sidelines, walk around the field or neighborhood.

Write it down – Keep track of your exercise and you’ll see your progress and accomplishments. When you look at your monthly calendar and see how many times you actually did exercise, it can encourage you to keep going.

Change it up – I get bored doing the same exercises all the time so I do a variety of things. Kickboxing one day a week, walk with someone another day, go to the gym, do yoga at home, swim, walk on the sand. It keeps it interesting and fresh.

Cut yourself some slack – When you miss a day, that’s ok. Just get back at it the next day. Sometimes we are too hard on ourselves and are always looking at what we didn’t do, instead of what we did accomplish.

Every little bit helps – You don’t always need a hardcore workout. It seems we have designed our world to eliminate physical movement in our day to day lives. In his book The Blue Zones, Dan Buettner talks about the places in the world where their populations live longer and healthier, and that one of the common traits they have is they incorporate exercise into their daily lives. So walk to the store if you can, take the stairs instead of the elevator. Ask your yard person to come every other time and you do the lawn on the alternate weeks. There are many ways to incorporate movement into our daily lives if we look for them.

 

 

 

 

 

savoring walk

zack-minor-15099-unsplash.jpg
 

marc-e-marc and i like to pick a new neighborhood and take a walk. it can be a residential, commercial, even industrial area. we park and walk and really try to notice all the different things going on. it’s fascinating what you see, hear, and smell. even areas that we’ve driven through for years take on a completely different look when you walk it and really take notice of all the details. sometimes it’s nice to go into zen mode with your headphones on and walk but this type of walk is stimulating whether it’s in nature or in an urban setting.

so when i was listening to a podcast called the science of happiness, the episode talked about a ‘savoring walk’ which is the habit of taking a walk outside and really noticing the things around you and how impactful it can be in our stress levels. the walk takes on a completely different feel than when you walk and tune out to things around you. so how about a 20 minute savoring walk today?

let me know if savoring walk is something you do and if you find it beneficial.

~kai