I recently saw on youtube Scott Rider interviewing Brian Grant. Brian is a former professional NBA basketball player and the founder of the Brian Grant Foundation. Scott is a former runner and both he and Brian have Parkinson’s. I enjoyed the interview and there were five points that they discussed that I wanted to highlight.
Asking for help-Brian mentioned he has a hard time asking those closest to him for help because in the future he will really need their help, and doesn’t want to overwhelm them now.
Scott had a really good point, that for the most part people really do want to help. As I thought about it and turned the tables on how I’ve felt when people have needed my help in the past, that it’s true. It feels good to help others so sometimes we shouldn’t deprive someone from providing help and just accept it graciously.
Letting your tremor go- I thought this was funny. They both talked about how the anxiety of holding it together and trying to not show your symptoms can be worse than the symptoms itself. So it feels good to sometimes when you’re by yourself to just let your tremor go!
Lose the vanity- One of the best pieces of advice that Brian received was from Michael J. Fox telling him to lose the vanity. That sometimes when you’re a celebrity, part of your identity is wrapped up in your vanity, but with PD you need to strip that away. Although most of us are not celebrities, it’s still good advice we can take to heart.
Advice to newly diagnosed - You are not alone and it could be much worse.
I think many of did feel alone when we were first diagnosed because we just didn’t know anything about PD and immediately thought the worst. So keep telling your story because you never know when it can benefit someone and if you are newly diagnosed, find a way to connect with someone who has PD. There are many others going through the same thing as you are.
Asking others what are their stories- Lastly, Scott mentioned that he goes up to people who have visible disabilities and tells them he has PD and asks about their story. I’d have a hard time doing that but it’s a very interesting idea because it could be mutually beneficial to share the different challenges that we all have and that person may not often have the opportunity to tell their story.
Here is a link to the full interview. Enjoy your day! xoxo kai