aloha friday

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four days until christmas and thrilled that my youngest son austin is home for a visit. my mom is counting the days and can’t wait to feed him. that’s what grandmothers do. for christmas eve dinner, we’ve decided to have a fondue dinner which will be fun and different for us. in hawaii the cuisine is a mix of many cultures. so for holiday dinners it’s common to have traditional food mixed in with korean, japanese, portuguese, filipino, chinese, & many other cuisines. my mom is korean so no matter what the meal, if it’s at her house there will most likely be kim chi and other little ban chan which are little side dishes served tapas style. happy holidays to all my fellow parkies.

~ 27 breakfast recipes for a hungry holiday crowd.

~ fda approves focused ultrasound for pd. this is interesting and something i want to read more about.

~ this is a great tip for list makers - the rule of 3.

~ can’t wait to see mary poppins returns.

~ happy holidays!

Living w/Style & Parkinson's: Sharon Krischer

Biking with Mr. Twitchy

Biking with Mr. Twitchy

Sharon Krischer has an incredibly full life. She has a wonderful blog called Twitchy Woman, which gave me the inspiration to start my own blog and is a motivating advocate for Parkinson’s. So I was thrilled that she agreed to do my first interview in a new column called Living w/Style & Parkinson’s.

Sharon tell me a little about yourself.

I grew up in St. Louis, met my husband, Joel, at the University of Illinois and followed him to University of Michigan where he went to law school.  I live in Beverly Hills, California with Joel, otherwise known as Mr. Twitchy, and our dog Lucy.  We have 3 daughters and 4 grandchildren.  I have a master’s degree in Audiology and had my own Calligraphy and stationery business for about 15 years.  I then got involved with non-profit organizations, serving as president in several of them and found my niche training others to become leaders. We love to travel and have been all over the world in the last 10 years.  

Sharon & marilyn, stylish at the parkinson’s moving day walk

Sharon & marilyn, stylish at the parkinson’s moving day walk

Enjoying the cold fall weather in Quebec

Enjoying the cold fall weather in Quebec

What is your journey with Parkinson’s? 

I started noticing some odd things in the spring of 2008.  I would be writing and my foot would start to shake, and it intensified after breaking my other ankle in August. In January 2009, my Internist sent me to a Neurologist who said I had a Parkinson’s like tremor.  He put me on Requip and sent me home with no information about PD.  I was also diagnosed with breast cancer that same month and had a lumpectomy and 6 weeks of radiation.  It was not a good month for me.  When I came out of my fog from everything about 6 months later, I went back to my internist, insisting that I needed to change doctors.  He then sent me to a Movement Disorders Specialist, who diagnosed my PD, changed my medications and gave me a lot of information.  I have been with her ever since. I have been fortunate that I have tremor dominant Parkinson’s, which progresses much slower than other types.  10 years later, I am still doing well. 

I began to get involved with the PD community about 5 years ago when I started getting phone calls and emails from people asking if I would talk to their relative, friend, co-worker who was recently diagnosed.  Those meetings led me to start my blog, Twitchy Woman, in March 2015 to reach out to a broader audience.  I never imagined that I would still be writing the blog almost 4 years later.  And the blog has created many opportunities for me, including being an official blogger for the upcoming 2019 World Parkinson Congress in Kyoto.

PD women looking good!

PD women looking good!

I love reading your blog and in it I can see how active you are in the PD community. What would you say those who are thinking about being more involved and what is a good way to start?

Start in your community – go to a support group, join a PD exercise, boxing, yoga or dance class to meet others with PD.  Attend local programs put on by a local or National PD organization.   Find out how you can get involved in one of the organizations at the local level.  The Parkinson’s Foundation, Michael J Fox Foundation, APDA (American Parkinson’s Disease Association) Brian Grant Foundation and Davis Phinney Foundation are all National Organizations that are good to reach out to.

What are you enjoying right now? 

My grandchildren!  Actually, all things considered, things are pretty good for me, and having Parkinson’s has opened up a whole new world of opportunities. I have met many new friends with PD, we laugh together and cry together, we understand each other.

 What is one of your challenges right now? 

My tremor in my foot is acting up again, creating some problems for me.  I did not start to take Sinemet until 5 years ago and have never increased the dose.  I am worried that my symptoms are starting to get worse.  My other challenge is to slow down.  I often take on much more than I should because I forget my limitations.

Do you have a morning or evening routine that helps you start or end the day well?

I take my dog on an early morning walk, which at this time of year, is before the sun comes up.  It is so quiet and peaceful.  A good way to start the day.

Do you have any favorite beauty products?  

I use mostly Laura Mercier products.  However, my dermatologist has a cleanser that she developed, which has really helped relieve my dry skin.  And for my itchy scalp, a beauty supply recommended Klorane Sos Serum with Peony for Sensitive and Irritated Scalp, which works better than anything else for me.

How would you describe your style in three words? 

Casually stylish, contemporary, youthful

 What is something you do for self-care?

It seems that everything I do is for self-care:  yoga, boxing, tennis.  Exercise 5-6 days a week.  Massage every two weeks.  Piano lessons, which are supposed to help my brain.  Playing tennis with friends every week, leading an active life. 

On one of her travels around the world

On one of her travels around the world

 
With Ninja Warrior, Jimmy Choi

With Ninja Warrior, Jimmy Choi

What makes you laugh? 

 My husband and my grandchildren!

 What or who inspires you right now?

 I am inspired by all of those people with PD who work hard to live the best life possible with a chronic disease.

 A food you love, a dessert you love, a song you love. 

I love berries, pasta with a great tomato based sauce and almost anything chocolate, especially good brownies.   A song I love:  Your Song by Elton John

Thanks so much Sharon!

Don’t miss Sharon on her blog at Twitchy Woman and her Facebook page @twitchywoman. Sharon will also be blogging for the World Parkinson’s Congress this June from Kyoto, Japan.

keeping a positive attitude

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it’s always amazing to me to see how positive, people with pd or other chronic illnesses can be. they are the first to offer empathy, constantly spreading positive messages, and looking for the bright side in tough situations. and that’s in spite of having some really tough days. or maybe it’s because we have some really tough days.

on those tough days you try to go with the flow, ride it out, work through it, keep yourself occupied, remember that it could be worse, put it into perspective, feel sorry for ourselves, or get irritated that it prevents us from doing the things we want to do. any and all of the above. boy, no wonder we’re so tired. but we always seem to remember that the storm too shall pass, and there will be sunshine again.

i look at Instagram and see the daily posts of inspiration and encouragement. I read all the wonderful blogs of people with pd, or an online forum who share their personal journey and i can’t help but feel better at that moment. so the next time you’re having a tough day, connect with someone else who has pd and most likely their support will be just the thing you need to feel a positive attitude again. i’d love to hear if you have had an experience with how someone else with pd helped you through a tough day? ~kai

aloha friday

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christmas is getting closer and i’m enjoying the season. we’ve agreed as adults in the family that we won’t exchange gifts but will get gifts for the kids. there really does come a point in life when you just don’t want more stuff and it’s the time spent with each other that really does mean the most to me. this weekend i’ve volunteered to paint my moms guest bathroom and maybe bake some holiday goodies. hope you have a peaceful weekend.

~ michael j. fox foundation 2018 year in review. lots of great research ongoing.

~ balloon based play therapy for parkinson’s-this is a fascinating article and i think is a great idea.

~ oh parkinson’s - this new holiday song for parkie’s made me laugh!

~ the new york times cooking site revealed their 50 most popular recipes of 2018 and the number one recipe was chicken francese. if you’re looking to free form cook, a nice pot of portuguese sausage, kale, & potato soup would be comforting. saute an onion, a few cloves of garlic, add sliced sausage. when its brown add some chicken stock and thyme if you have some lying around. simmer for a few minutes, add a couple of diced potatoes and shredded kale, s&p to taste & cook until soft. with a chunk of good bread & a glass of wine, what else do you need?

~ enjoy reading books? how about doing the 2019 reading challenge from the modern mrs. darcy along with me.

~ don’t wait for someone else. do it alone.

easy slow cooker applesauce

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this is an easy and healthy snack or dessert that’s great for adults and kids. i used granny smith apples because their tartness balances out the sweet. it’s great on yogurt with a sprinkle of granola or nuts, warm oatmeal, or ice cream. enjoy!

6-8 granny smith apples, cored & cut into quarters

1/2 cup apple juice or cider

3 Tablespoons sugar or honey (i used coconut sugar but any sugar will do)

sprinkle of cinnamon

1/2 teaspoon vanilla

pinch of ground cardamom (optional)

add all of the ingredients in a slow cooker and mix together. put on high and check after 2 hours and mash with potato masher or inversion blender into big chunks. Cook for another 1 to 2 hours checking after each hour and mashing to your desired smoothness. Add a little additional liquid if needed each time you check on it.

classic ballet flats

~this is not a sponsored post. i just love these shoes.

some things never go out of style, and one of those things are ballet flats. my favorite right now is felicia by sam edelman. first off they are very light which helps me with my gait. clunky shoes make it easier for me to trip. they have elastic on the rim of the heels so they adjust to your feet which help them fit well, and are very easy to slip on and off. i travel with them and have walked many miles in them and they were super comfortable! and of course they look darling. they come in many colors and fabric styles so you are sure to find one you like. i have a classic black suede, a blue striped fabric, and a leopard print leather.

since they are a classic design, you can stay with a traditional color or you can go a little trendy if you want, with the color or pattern, and they still remain timeless. they’ve held up to several years of heavy wear and still going strong.

i wear a 6.5 and they are true to size. if you’re looking for a classic, comfortable, stylish pair of flats, i’d highly recommend them. have you tried sam edelman shoes or do you have a great ballet flat that you can share with us?

~kai

aloha friday

don’t you love the outfits these gals are wearing? especially the leopard print hat! i picked up two tiny little metal desks that an elementary school was throwing away and i’m so smitten with them. they are solid metal and have probably been used for the last 50 years and still going strong. they are bit rusty but i sort of love the rust. i can sand them and paint them but i’m leaning towards leaving them as is. i’m not sure how i will use them yet, maybe an end table or a nightstand, even a plant stand would be interesting. the cutest thing was when i picked one of them up, a little piece of crayon fell out! i wondered how old it was and all the little ones over the years who have used that desk. this weekend i’m taking an online photography class and looking forward to a nice long walk. happy weekend.

~ interesting article about the correct way to sit in a chair.

food

~ i once heard that it’s not what you eat between thanksgiving and new years, but what you eat between new years and thanksgiving. so with that guilt off of my conscious, i’ve enjoyed a few extra treats including my yearly panettone. there are so many delicious cookie recipes going around. alison roman’s salted butter & chocolate chunk cookies seem to rising to cult status & the fascinating world of competitive cookie decorating seems appropriate for the season. serious eats has some good ideas for homemade food gifts. this year i’ll be making granola, mustard, & flavored salts for my gifts.

if you’re up for something healthy & delicious try this free form recipe, sweet potato & arugula salad. cube & roast sweet potato. toss with arugula, toasted nuts, pomegranate seeds, red onions, raisins, a little pomegranate molasses, & toss w/vinaigrette. it’s delicious.

~ as if you don’t already have enough gift advice, but these art prints from society6 are unique & affordable.

~ kai

little mood boosters

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when you have parkinson’s, your mood can go south quickly and out of nowhere. you may have a wearing off period or side effect from your medication, you suddenly get fatigued, or if you’re like me, you can get a little foggy (it sort of feels like fireworks are going off in my brain). when you’re having a challenging day, sometimes just doing something small can pick you up and make you feel a little better. it sort of interrupts the cycle just long enough to get you back on track. so i’ve found little mood boosters that can help.

~ go outside and just look at the sky

~ take a walk

~ listen to an inspirational podcast or audio book (if you need suggestions email me i have a bunch i like)

~ read a few pages of an inspirational or funny book

~ listen to some upbeat music

~ call or text a friend or family member

~ meditate

~ clean or declutter something that can be finished in one sitting

~ organize my to do & want to lists

~ watch a short funny video

~ be a tourist in your own city for the afternoon

~ dance or sing for five minutes

what things do you do that help boost your mood? ~kai

aloha friday

well we have worked through all the thanksgiving leftovers and the christmas tree is up, so i think we are off to a good start to the holiday season. marc, justin and i had a fantastic dinner last night at rangoon burmese kitchen. the fermented tea leaf salad was such a bright different flavor. i also had two wonderful leisurely lunches with friends looking over kahala beach which was just dreamy. the weather is so beautiful i hope to get out and do some walking this weekend at ala moana park.

~ the new season of the marvelous mrs. maisel starts december 5th. love this show.

~ podcasts i’m enjoying:

~ if one of your hobbies is genealogy research this site has really interesting free webinars with great tips on how and where to research.

~ good books i’ve recently read:

~ caroline’s house on unfancy is just charming.

~yotam ottolenghi’s recipe for slow cooked chicken with crisp corn crust sounds mouthwatering.

enjoy your weekend! kai



losing your sense of smell & taste

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one of the potential symptoms of parkinson’s is losing your sense of smell, which in turn lessens your sense of taste. foods become more bland and not as interesting. my coffee in the morning used to be an incredible experience of smell and taste first thing in the morning and although i still love the experience that comes with coffee and my morning routine, the coffee itself is definitely not as flavorful as it used to be.

as i’ve mentioned in a previous post, it might also be contributing to why my sweet tooth has increased. my taste buds might be seeking more extreme flavors to get satiated. so it can be easy to go overboard with salt or sugar while cooking without knowing it. so here are few things that can help boost the flavor quotient of food.

  1. vinegar & lemon juice - both of these can bring an extra depth of flavor to most dishes. you can add a tablespoon of vinegar during cooking or at the end, but use fresh lemon juice at the end of cooking to keep the flavor bright.

  2. citrus zest - aside from the juice, the zest with all the oils adds a wonderful intense citrus flavor. zest the fruit first and then juice it.

  3. spices - you can go in so many different directions with just the use of spices. spice blends are also a great. i have been loving sumac lately.

  4. herbs - fresh or dried they can add tremendous flavor to foods. if you can have a few pots of them growing, even better. something as simple as a large handful of chopped mixed herbs in an omelet can elevate the dish to something special.

  5. condiments - mustards, hot sauces, ko chu jang, harissa, & miso are all great ways to add an umami bomb of flavor.

  6. bitter vegetables - radicchio, endive, broccoli rabe, and mustard greens. adding these to salads, soups, stir fries can add a pop of interesting flavor.

  7. pomegranate molasses - this used to be an exotic ingredient but now can be found in many grocery stores or online. it’s thick and has a sweet and sour flavor and is delicious. add a spoonful to your vinaigrette, drizzle it over roasted vegetables, or brush it over cooked meats while they are resting.

    many of these spices and condiments will last for a long time, so i have a ton of them in my fridge. that way i can cook simply but change the direction with a different spice. i can pick up a package of chicken thighs and pan fry them with a mustard sauce, or smear them with a ko chu jang sauce and bake them, or simmer them in a curry sauce.

    have you started losing your taste and smell and if so what are some other ways that you add flavor to your foods?

    ~kai

ratatouille & goat cheese dip

this is a delicious and healthy appetizer originally from food and wine magazine. the leftovers are great over toast or pasta. trying to squeeze in as many veg as i can this holiday season. enjoy!

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from food & wine

ratatouille and goat cheese dip

Ingredients

  • 1/2 cup plus 2 tablespoons extra-virgin olive oil

  • 2 medium onions, cut into 1/2-inch dice

  • 4 large garlic cloves, minced

  • Kosher salt

  • One 1 3/4-pound eggplant, cut into 1/2-inch dice

  • 1 teaspoon finely chopped thyme

  • 2 large red bell peppers, cut into 1/2-inch dice

  • 1 medium zucchini, cut into 1/2-inch dice

  • 1 medium yellow squash, cut into 1/2-inch dice

  • 1 pound medium tomatoes, cut into 1/2-inch dice

  • 1/4 cup chopped basil, plus more for garnish

  • 1 tablespoon fresh lemon juice

  • Freshly ground pepper

  • 3/4 pound fresh goat cheese

  • Assorted chips and crackers, for serving

How to Make It

Step 1    

In a large skillet, heat 2 tablespoons of the olive oil. Add the onions, garlic and a generous pinch of salt and cook over moderate heat, stirring occasionally, until just softened and starting to brown, about 8 minutes. Scrape the onions and garlic into a large bowl.

Step 2    

Wipe out the skillet and heat 1/4 cup of the oil in it. Add the eggplant and thyme and cook over moderate heat, stirring occasionally, until the eggplant is tender and lightly browned, 8 to 10 minutes. Scrape the eggplant into the bowl with the onions. Repeat with the red pepper, zucchini, yellow squash and tomatoes, cooking each vegetable separately in 1 tablespoon of oil with a generous pinch of salt until just tender and lightly browned, 5 to 7 minutes per vegetable. As they are cooked, add the vegetables to the bowl of onions and eggplant. Stir in the chopped basil and lemon juice and season with salt and pepper.

Step 3    

Preheat the oven to 350°. Spread the goat cheese in the bottoms of 2 small baking dishes (about 1 quart each). Spoon the ratatouille on top, cover with foil and bake for about 25 minutes, until hot. Top with more basil. Serve warm with chips and crackers.

Make Ahead - The ratatouille can be refrigerated for up to 3 days before making the dip.

~kai

many ways to spend thanksgiving

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“an optimist is a person who starts a new diet on thanksgiving day.” irv kupcinet

it’s a busy time with everyone around the country and other places who celebrate thanksgiving this week. when i was a child i think there was more a singular version of what the perfect thanksgiving was. the classic turkey dinner with family, the idyllic norman rockwell style get together. today it’s incredible the way the holiday has expanded to include and embrace many different ways to give thanks.

whether it’s a grand formal event, or enjoying takeout for one, they can all be enjoyed in the same way. by the way my secret fantasy thanksgiving for one is, early in the day doing some exercise outdoors to assuage the guilt for all the food i’ll be eating later in the day. ordering takeout and also stopping at a bakery and picking up a freshly baked pie, all the while giggling inside that i’m not cooking a thing. enjoy a glass of wine while i change into my pajamas, and start a good movie. then i eat in reverse order starting with the pie first and work my way back if i have room! perfect.

~ this looks like a delicious menu for a quick and easy dinner for one or two.

~ this new york times article shows how 15 families from across the US celebrate their beautiful and diverse thanksgiving food traditions.

~20 great thanksgiving movies to watch with your family.

~how to set a basic, casual, and formal table setting.

~ Want a low-alcohol Thanksgiving cocktail that drinks like a wine?

~ having thanksgiving dinner at daniel in nyc sounds devine.

happy thanksgiving. kai

experiences not things

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it’s the beginning of the holiday season and it seems that the buying season starts earlier and earlier in the year and many sites are already ramping up the “what to buy” lists, sales, and reviews. let the games begin. i’m not immune. last week i went down a black hole on my laptop trying to convince myself why i needed this pair of jeans that was on sale. almost every fashion or lifestyle site i subscribe to were talking about this sale, it’s the first time they went on sale, they were only on sale for another 24 hours, they were fantastic, entire posts on reviews of them, i was hooked. i went to the site and read through the details and as gorgeous as they were, saw that the rise of the jean was too high for me because i’m 5’2”. i even already own a pair of jeans with a rise that was lower than these and they were still too high for me so i definitely knew they wouldn’t work.

that didn’t deter me. there were were tons of reviews on the site so i patiently read through them looking for reviews from petite woman saying how fabulous they were. i went to other bloggers who i know had reviewed them in the past and read their reviews again. i was literally trying to convince myself that i needed these jeans! half an hour later i finally snapped out of my trance, thankfully before i purchased them.

i do love the holidays and want to enjoy all the wonderful things that go with them but i will try and take a breath and move slowly through the consumption part of it, and try to focus on the people and experiences that are the important part. i’ll try to keep the idea of hygge close and be mindful. i’ll try to create an atmosphere that works for me, at this time of my life, without trying to adhere to the pretend perfection that we see in marketing and sometimes on social media. and if you see me in public with jeans that are too high waisted for me, know that i am still trying…….. :-)

~kai

aloha friday

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we’ll be shopping along with everyone else this weekend for thanksgiving. always a little gardening and a few things on netflix i want to catch up on. enjoy your weekend.

~exercise, exercise, exercise……………… :)

~these are some powerful women with parkinson’s. go ladies!

~the free eat more plants cookbook -if you’re looking for more ways to incorporate a plant based diet, leo babauta from zen habits has graciously put together this free downloadable cookbook with some terrific simple recipes.

~ rock on michael j. fox and all who raised money for parkinson’s at the #foxgala.

~ rules of civility by amor towles - i’m almost done reading this book and loving it.

~ this butternut pumpkin pie from stella parks looks incredible.

savoring walk

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marc-e-marc and i like to pick a new neighborhood and take a walk. it can be a residential, commercial, even industrial area. we park and walk and really try to notice all the different things going on. it’s fascinating what you see, hear, and smell. even areas that we’ve driven through for years take on a completely different look when you walk it and really take notice of all the details. sometimes it’s nice to go into zen mode with your headphones on and walk but this type of walk is stimulating whether it’s in nature or in an urban setting.

so when i was listening to a podcast called the science of happiness, the episode talked about a ‘savoring walk’ which is the habit of taking a walk outside and really noticing the things around you and how impactful it can be in our stress levels. the walk takes on a completely different feel than when you walk and tune out to things around you. so how about a 20 minute savoring walk today?

let me know if savoring walk is something you do and if you find it beneficial.

~kai

november garden notes

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“Gardening is cheaper than therapy, and you get tomatoes.” – Unknown

ahhh the garden in october. the veg beds are slowly coming in. i tried zucchini again this year but had to pull them because they were overly infested with aphids. i think i’ll have to give up on zucchini and cucumber, between the powdery mildew and aphids it just doesn’t work in my humid climate. the chard and tomatoes are doing well along with the various herbs.

the rainbow ti plants just ended their gorgeous bloom which attracts tons of nice buzzy bees, so it’s about time they get a trim. the agapanthus and hilo beauty plumeria tree are ready to lie low for the winter. the plumeria flower is a deep dark maroon color and is in front of the house. over the years i’ve had several people who were driving by stop and ask if they can have a cutting because the color is so stunning. i’m also thrilled to see the two strawberry guava plants that i started from seeds a few years ago have a few fruit flowers starting! each fall i put an inch layer of compost throughout the entire garden and over the grass and it slowly absorbs into the earth, so by the time spring arrives the plants are ready to burst into summer. it really helps my heavily clay soil.

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the papaya tree has a handful of fruit starting and the lilikoi (passion fruit) has made a comeback after it’s near death and has a couple of fruit starting. lastly the little potted lemon verbena keeps on chugging. i snip off the leaves and brew tea with a little added honey which is wonderfully soothing. between the tea and the chirping of the birds, all is well in my little garden.

kale quinoa bites

recipe from  101 cookbooks

recipe from 101 cookbooks

another delicious and healthy recipe from heidi swanson at 101 cookbooks. these dense little nuggets are great for breakfast, lunch, or snack and are highly flexible. they are almost like a frittata but with the quinoa it makes it a whole little portable meal. i made them as the recipe called for but also made them with leftover roasted squash and queso fresco. this is a great way to use the bits and bobs in the fridge. one more thing, i didn’t add the breadcrumbs and it turned out great without it. thanks heidi for another fabulous recipe!

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let’s eat ;)

 

can illness bring you joy?

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having parkinson’s can be difficult. there is not a day that goes by that it doesn’t stay top of mind. you have an invisible chain to your clock because you need to see if it’s time to take your medication. some days it’s difficult to get the energy to do the tasks for the day and to be your own best cheerleader.

but in spite of all the challenges, can illness bring joy to our lives? i say yes. it can bring into focus at laser speed the things and people that are most important in our lives. it can provide gratitude because we understand loss. it can teach us greater empathy to others when they are having a difficult day. it can bring us joy by learning to live and enjoy the present moment.

so when i’m having a down moment, i try to remember not only what parkinson’s has taken away, but what it has given me.

aloha friday

nighthalks  ~ edward hopper

nighthalks ~ edward hopper

this week was a pretty mellow week. i did my usual meals on wheels delivery which i love to do and saw the new version of a star is born with lady gaga and bradley cooper. both are super talented and it has a great soundtrack on spotify that i’ll be listening to all weekend.

~ the art institute of chicago just put over 44,000 works of art online in high resolution for free. they also have information on each piece and artist. i can’t wait to get a cup of coffee and peruse….

~ enjoying the audiobook “bad blood: Secrets and Lies in a Silicon Valley Startup” by john carreyrou. it’s a fascinating account of the rise and fall of the firm theranos, the multibillion-dollar biotech fraud startup headed by elizabeth holmes.

~ when life gives you parkinson’s is terrific new podcast from larry gifford.

~ i started following islandlivinglisa on instagram. beautiful photos and lots of positive parkinson’s inspiration!

~ goodness these keyboard shortcuts are fantastic.

~ i can never have too many recipes for pumpkin bread and this one with maple butter sounds delicious. happy weekend!

“anything one does everyday is important and imposing and anywhere one lives is interesting and beautiful” ~gertrude stein


online parkinson's community

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i’m very happy with my doctors. hawaii has very few neurologists who are movement disorder specialists, and of those few a couple of them don’t take my insurance or are not taking any new patients, so i feel fortunate to have one. she is wonderful when i visit but i know she is also very busy, so if i need to email or call between visits, the communication is a little on the light side.

it also seems like those of us with parkinson’s are constantly adjusting our medications as our symptoms change, so when i started having some off periods and some anxiety, i thought i’d reach out to an open forum on the parkinson’s foundation website to see what sort of feedback i could get.

wow i had no idea the collective power and wisdom i would find on them. i posted my question and got some very thoughtful and varied responses. i also posted on their ask a pharmacist forum who is moderated by Mark Comes who is a pharmacist who also has pd and received some great feedback also.

of course it doesn’t replace the advice i get from my doctors, but sometimes the best advice comes from others in your same shoes and it’s wonderful to know that our pd community is ready and waiting to help. and by the way, i was also able to help by sharing my experiences with a others posting questions. if you know of other helpful forums please post them in the comments.